Selected Publications


For a complete list of publications, please see my CV

ACM DL Author-ize serviceLessons learned from a yearlong deployment of customizable breast cancer tablet computers

Maia Jacobs, James Clawson, Elizabeth D. Mynatt
WH ’15 Proceedings of the conference on Wireless Health, 2015
Patient-centered technologies demonstrate great promise for users, however they often focus on solitary moments or singular tasks within a broader healthcare journey. We utilized a technology probe to investigate how patients managing long-term diseases use flexible health tools throughout their health journeys. Through a yearlong deployment, we provided 36 cancer patients with a suite of resources on customizable mobile tablets. The majority of our participants did engage with the technology throughout treatment and into survivorship. We analyzed participants’ tablet adoption, usage patterns, and customization and describe how each of these influenced technology engagement and changes in use. Finally, we identified a set of lessons researchers can use to guide the design of future patient-centered technologies. Specifically, we discovered that customizable tools reveal insights into patients’ goals and values, integrating health and non-health resources encourages participants to return to health resources when needed, and a need exists to expand our definition of health resources.

ACM DL Author-ize serviceComparing Health Information Sharing Preferences of Cancer Patients, Doctors, and Navigators

Maia L. Jacobs, James Clawson, Elizabeth D. Mynatt
CSCW ’15 Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing, 2015 As technologies such as personal health records and symptom trackers become more common, we are seeing an increase in patients actively engaging in health tracking behaviors. Patient collected data can provide valuable insight for healthcare providers, particularly in the area of breast cancer. Thus far, little work has examined whether the health information that patients are willing to track and share aligns with the information needs of healthcare providers. Our work provides a comparison between the health information sharing preferences of breast cancer patients, doctors and navigators. We identify discrepancies between stakeholders’ preferences, such as patients’ hesitation to share feelings of loneliness, signifying where technology can play an important role in helping patients prioritize the health information shared with providers. We present design implications from this work to guide the development of future health information sharing tools that consider the differing needs of healthcare stakeholders.

ACM DL Author-ize serviceMy journey compass: a preliminary investigation of a mobile tool for cancer patients

Maia L. Jacobs, James Clawson, Elizabeth D. Mynatt
CHI ’14 Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 2014
Health information management for cancer care is a challenging and personal process that changes over time based on one’s needs, goals, and health status. While technologies supporting health information management appear promising, we do not fully understand how health information tools fit into patients’ daily lives. To better understand the opportunities and usage barriers of these tools, we designed and deployed a mobile, tablet-based health management aid: My Journey Compass. After one month of use, we interviewed twelve breast cancer patients to investigate their initial patterns of adoption, adaptation, use and non-use. We found that developing a tool that was customizable, mobile, and integrated into the patients’ healthcare system resulted in a set of surprising uses by breast cancer patients for a wide variety of tasks. Our study demonstrates the potential for health management tools to improve the cancer care experience and for HCI research to influence existing healthcare systems.

ACM DL Author-ize serviceCancer navigation: opportunities and challenges for facilitating the breast cancer journey

Maia Jacobs, James Clawson, Elizabeth D. Mynatt
CSCW ’14 Proceedings of the 17th ACM conference on Computer supported cooperative work & social computing, 2014
Cancer navigation programs help patients overcome emotional, financial, and logistical challenges not typically addressed by the medical system. In this paper, we provide a detailed description of a rural cancer navigation organization, specifically detailing the roles collaboration and technology play in supporting navigation work. Examining navigation from a CSCW perspective, we see that navigation is a collaborative care system requiring coordination with patients, providers, and other navigators. Our study reveals a number of design opportunities for supporting navigation in the areas of resource monitoring, knowledge transfer, case management, long term navigation, and development of best practices. Supporting cancer navigation will be a critical step towards improving the healthcare experience for cancer patients.