As people live longer, health issues also become more long lasting. During lengthier health journeys, patients’ needs, goals and priorities change with time. My dissertation research aims to explore the influence of adaptive, personalized health tools on individual’s cancer experiences through longitudinal technology deployments. The study will result in novel patient-facing tools and will demonstrate the feasibility of developing technologies that provide personalized support to individuals over time.This work is supported by an NIH/NCI Smart and Connected Health award (RO1 CA195653).
My Journey Compass
The My Journey Compass project examined the ability for existing mobile technology to support breast cancer patients. We developed mobile tablets for breast cancer patients that included a suite of existing health, communication, and entertainment applications. Over the course of a year, the tablets were deployed to newly diagnosed breast cancer patients. The results of this research include design guidelines for future mobile health tools, specifically highlighting the importance of customization and personalization in patient-centric interventions. Publications: CHI 2014, Wireless Health 2015.
Qualitative Assessments of Patient Needs
Over three years of research, I have conducted interviews and focus groups with cancer patients and survivors to understand how patients’ needs change over time. These interactions have highlighted how cancer journeys are both unique and personal, revealing the broad range of factors that influence one’s cancer experience. An analysis of this work led to the development of a cancer journey framework. The framework portrays the breadth of factors that comprise a cancer journey in order to aid designers in collecting a comprehensive set of information needed to personalize health tools appropriately. Publications: CSCW 2014, CSCW 2015, Pervasive Health 2016.
Sexual Assault Transparency
According to the CDC, one in five undergraduate women will experience a sexual assault during their time at college. However, sexual assaults on campus are not being reported. Why? We want to help make the Georgia Tech community safer for all students and staff and hope that the Sexual Assault Transparency @ GT tool will be an initial step in that process. By collecting and visualizing data about sexual assaults on campus, this tool will provide greater awareness of sexual abuse and violence within the community, data for the Women’s Resource center, and support for survivors. This tool also offers a way to anonymously discuss instances of sexual assault within the student body. This project first place for community impact in Georgia Tech’s 2014 Convergence Innovation Competition.
Understanding Couples’ Sharing Preferences
Most devices today are developed adhering to a one-user paradigm. Yet within households, couples are often sharing devices and accounts. In this work we take an in-depth look at sharing practices and preferences of cohabiting couples, and discuss the nuances of existing practices surrounding accounts and devices. We provide a structured account of these sharing practices to inform the design of multi-user settings within future technologies. Publications: CHI 2015, GROUP 2016 [coming soon]. This work was done as part of a Yahoo research internship.